Susan Kelly at the Biological Interest Group – Monday 21st March, 2-3pm, Byrne House

You are invited to the next meeting of the Biological Interest Group. It will take place this coming Monday 21st of March. The meeting will be held in the seminar room at Byrne House, from 2-3pm. Participants can bring lunch and drinks if they wish.

Next week we are very pleased to receive the visit of Susan Kelly, from Egenis, discussing her paper “Recontacting in clinical practice: an investigation of the views of healthcare professionals and clinical genetic scientists in the United Kingdom”. Daniele Carrieri, who works with Susan on her project, kindly sent us instructions and descriptions for the two papers they are circulating:

“Dear BIG group,

During the 21st of March BIG meeting Susan Kelly will give an overview of the ‘MAINSTREAMING GENETICS: Recontacting patients in a dynamic healthcare environment’ project.
To help this presentation, and the discussion we are submitting to the BIG group 2 papers (both attached): Paper 1- the main one for you to read, and Paper 2 – the optional one. Both papers should be quite descriptive and simple to read.

Paper 1
This paper is a DRAFT. It is based on interviews conducted with healthcare professionals (HCPs) we haven’t finished all these interviews yet, but, since we have conducted quite a lot already (26/30), we started drafting this paper.
The target journal is Genetics in Medicine – therefore the audience is mainly HCPs , international readership, but mainly from the US.
We would appreciate any comment on the readability and coherence of the paper. In particular any feedback on parts of the text we could cut (given that the draft is currently around 2000 words above the word limit) and/or suggestions for other journals.
We are also aim to write other articles from this data which will be more sociological and ethical. Please do let us know if you find anything in this current draft that feels like a good candidate for a ‘sociological/ethical expansion’.

Paper 2
This paper is published in Genetics in Medicine and is based on a survey of recontacting practices we conducted across genetics centres in the UK. I think this is a very useful reading as it provides more background to Paper 1 and to the whole project ,and it probably explains what ‘recontacting’ is about better than Paper 1.
For even more background information on the research project, please visit:

I have an interview on Monday 21st (with a HCP!). I should hopefully be able to be back before the BIG reading group starts.
Thank you very much in advance, and I look forward to discussing this work with you!”

Please contact Thomas Bonnin (tb391 [at] if you wish to join the group or for any other information.


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